The question is not how to get cured, but how to live.
Joseph ConradTags: inspirational illness healing recovery chronic-illness cure cures
All parents set out with expectations, hopes and dreams for their child. When a child is diagnosed with a health problem, these aspirations are altered. While one parent is hoping to see their child graduate from university, another is praying that they can live pain free
Sharon DempseyTags: parenting chronic-illness
Miraculously recover or die. That's the extent of our cultural bandwidth for chronic illness.
S. Kelley HarrellTags: chronic-illness disability dynamic-disability
It never occurred to me that somehow women did know about it. It just never occurred to me. Yes I am wearing sneakers too. You are in a suit, I am comfortable. So when she explained to me that this was the first event really of its kind, it floored me. So I called my daughter who is in her 30s now and I said “do you know what endometriosis is?” She said, “what? Have to pack the pack the busters.”
I said “no man, you have never heard of it?” No she said. I do not know what it is, and it occurred to me that my 30-year-old daughter who I told about endometriosis and it didn’t stick. If she didn’t know, and she is one of the hippest people I know, and her daughter doesn’t know, she has 19-year-old and she is a 13-year-old. The boy, we don’t care much about if he knows about it so much. There is other stuff for him to learn. Like how to roll a condom, things like that.
You know, and it occurred to me that if they didn’t know that there were hundreds of thousands girls out there that don’t know. It is not because their mothers don’t want to tell them, because it’s not religion, it’s pure ignorance. We don’t know, we don’t have the information, we have it now, and so now is why this very first gathering is happening. Now is why we’re all sitting here looking really fabulous as you are...
[Whoopi Goldberg on endometriosis awareness from the 2009 Blossom Ball]
Tags: health feminism illness feminist chronic-illness healthcare goldberg endo endometriosis women-s-healthcare invisible-illness whoopi-goldberg
We have a duty tonight. Everybody, and guys this for you as well because I know you know women. You have a duty tonight. You only have to tell one other person what you heard. Just tell them what you heard, or ask them have you ever heard of this? If the answer is no, share what you learn tonight.
That’s all. You don’t have to do anything else. You just have to tell somebody else. You have to take whatever stigma people think that is there. You have to take it. It’s not male or female. It has nothing to do with that. It has to do with, here’s a disease you don’t know about and you need to know about it. It’s that simple. It’s not rocket science.
[Whoopi Goldberg on endometriosis awareness from the 2009 Blossom Ball]
Tags: health illness awareness chronic-illness healthcare goldberg endo endometriosis women-s-healthcare invisible-illness whoopi-goldberg
The truth of the matter is, Satan and God may want the exact same event to take place - but for different reasons. Satan's motive in Jesus' crucifixion was rebellion; God's motive was love and mercy. Satan was a secondary cause behind the Crucifixion, but it was God who ultimately wanted it, willed it, and allowed Satan to carry it out. And the same holds true for disease.
Joni Eareckson TadaTags: inspirational chronic-illness
It's not easy to diagnose because depending where the endometrial deposits are, the symptoms can be quite different. It's an unrecognized problem among teenage girls, and it's something that every young woman who has painful menstruation should be aware of ... it's a condition that is curable if it's caught early. If not, if it's allowed to run on, it can cause infertility, and it can really mess up your life.
[Author Hilary Mantel on being asked about being a writer with endometriosis, Nov 2012 NPR interview]
Tags: feminism feminist sexism chronic-illness healthcare chronic-pain endometriosis women-s-healthcare hilary-mantel mantel
Armed with my positive attitude and inherent stubborn nature, I keep my mind focused and my life moving forward. I stop to rest, pout and even cry sometimes, but always, I get back up. Life is giving me this challenge and I will plow through it, out of breath with my heart racing if I have to.
Amy B. ScherTags: inspirational-quotes journey chronic-illness
As with many life-altering events, an autoimmune illness is almost guaranteed to cause you to re-evaluate your priorities.
Joan FriedlanderTags: chronic-illness autoimmune-disease
The 40-hour work week, long considered the gold standard, has quietly and insidiously stretched into 50 to 60 hours. Despite this accepted practice, social commentators and the average person agree that functioning at such a pace can't possibly be good for one's mental or physical health. /So I ask you: if the expanded work-week isn't healthy for someone in good physical condition, how can it possibly be acceptable for someone with a chronic illness? Quite simply, it's not.
Rosalind JoffeTags: chronic-illness autoimmune-disease
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