Our family was starting. We kept on moving with our young lives, shortly afterward and took Ben Young with us everywhere. But pretty soon Pegi started noticing that Ben was not doing the things some other babies were doing. Pegi was wondering if something was wrong. She was young, and nothing had ever gone wrong in her life. People told us kids grow at different rates and do things at different times.
But as Ben reached six months old, we found ourselves sitting in a doctor's office. He glanced at us and offhandedly said, "Of course. Ben has cerebral palsy."
I was in shock. I walked around in a for for weeks. I couldn't fathom how I had fathered two children with a rare condition that was not supposed to be hereditary, with tow different mothers. I was so angry and confused inside, projecting scenarios in my mind where people said something bad about Ben or Zeke and I would just attack them, going wild. Luckily that never did happen, but there was a root of instability inside me for a while. Although it mellowed with time, I carried that feeling around for years.
Eventually Pegi and I, wanting to have another child after Ben, went to se an expert of the subject. That was Pegi's idea. Always organized and methodical in her approach to problems, Pegi planned an approach to our dilemma with her very high intelligence. We both loved children but were a little gun-shy about having another, to say the least. After evaluating our situation and our children, the doctor told us that probably Zeke dis not actually have CP-he likely had suffered a stroke in utero. The symptoms are very similar. Pegi and I weighed this information. To know someone like her and to make a decision about a subject as important as this with her was a gift beyond anything I have ever experienced. It was her idea, and she had guided us to this point. We made a decision together to go forward and have another child.
Stichwörter: family disability unexpected stroke cerebral-palsy ben-young zeke-young
Worry is yet another side effect of dying.
John GreenStichwörter: dying disability true-story liked
When you focus on someone's disability you'll overlook their abilities, beauty and uniqueness. Once you learn to accept and love them for who they are, you subconsciously learn to love yourself unconditionally.
Yvonne PierreStichwörter: inspirational acceptance disability unconditional-love down-syndrome
An aged monk led me to the infirmary. "He's got the place to himself. Once the other invalids learned there was a dragon coming they miraculously got well! The lame could walk and the blind decided they didn't really need to see. He's a panacea.
Rachel HartmanStichwörter: humor miracles disability
The lingerie department is the only one that she can reach in her wheelchair. Nevertheless, she is fired the next day because of complaints that a woman who is so obviously not sexually attractive selling alluring nightgowns makes customers uncomfortable. Daunted by her dismissal, she seeks consolation in the arms of the young manager and soon finds herself pregnant. Upon learning
of this news, he leaves her for a
nondisabled woman with a fuller
bustline and better homemaking skills in his inaccessible kitchen.
Stichwörter: feminism body disability accessibility ableism
Now, Woolf calls her fictional bastion of male privilege Oxbridge, so I'll call mine Yarvard. Even though she cannot attend Yarvard because she is a woman, Judith cheerfully applies for admission at, let's call it, Smithcliff, a prestigious women's college. She is denied admission on the grounds that
the dorms and classrooms can't
accommodate wheelchairs, that her speech pattern would interfere with her elocution lessons, and that her presence would upset the other students. There is also the suggestion that she is not good marriage material for the men at the elite college to which Smithcliff is a bride-supplying "sister school." The letter inquires as to why she hasn't been institutionalized.
When she goes to the administration building to protest the decision, she can't get up the flight of marble steps on the Greek Revival building. This edifice was designed to evoke a connection to the Classical world, which practiced infanticide of disabled newborns.
Stichwörter: humor education prejudice oppression disability accessibility ableism
What's it like here?
There's a biscuit factory next door. We get the broken ones.
Stichwörter: prejudice disability symbolic call-the-midwife
It is an awful thing to be betrayed by your body. And it's lonely, because you feel you can't talk about it. You feel it's something between you and the body. You feel it's a battle you will never win . . . and yet you fight it day after day, and it wears you down. Even if you try to ignore it, the energy it takes to ignore it will exhaust you.
David LevithanStichwörter: loneliness imperfection transgender disability dissonance struggling dysmorphia fighting-yourself
The worst disability in life is a bad attitude.
SupaNova SlomStichwörter: wisdom life inspirational strength success kindness love courage joy motivation attitude meditation positivity awakening positive-attitude disability mindset mentality happyl mental-warrior
If you are disabled, it is probably not your fault, but it is no good blaming the world or expecting it to take pity on you. One has to have a positive attitude and must make the best of the situation that one finds oneself in; if one is physically disabled, one cannot afford to be psychologically disabled as well. In my opinion, one should concentrate on activities in which one's physical disability will not present a serious handicap. I am afraid that Olympic Games for the disabled do not appeal to me, but it is easy for me to say that because I never liked athletics anyway. On the other hand, science is a very good area for disabled people because it goes on mainly in the mind. Of course, most kinds of experimental work are probably ruled out for most such people, but theoretical work is almost ideal. My disabilities have not been a significant handicap in my field, which is theoretical physics. Indeed, they have helped me in a way by shielding me from lecturing and administrative work that I would otherwise have been involved in. I have managed, however, only because of the large amount of help I have received from my wife, children, colleagues and students. I find that people in general are very ready to help, but you should encourage them to feel that their efforts to aid you are worthwhile by doing as well as you possibly can.
Stephen HawkingStichwörter: disability
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