Behind every stressful thought is the desire for things to be other than they are.
Toni BernhardTags: stress chronic-illness
That’s the point. This healthy-feeling time now just feels like a tease. Like I’m in this holding pattern, flying in smooth circles within sight of the airport, in super-comfortable first class. But I can’t enjoy the in-flight movie or free chocolate chip cookies because I know that before the airport is able to make room for us, the plane is going to run out of fuel, and we’re going to crash-land into a fiery, agonizing death.
Jessica VerdiTags: health chronic-illness aids hiv
I felt entirely invisible and uncomfortably obvious all at the same time, sitting there in practically nothing in front of this stranger who was ignoring me.
Jessica VerdiTags: chronic-illness doctors
Listen, I wanted to say, I don't need your judgment, okay? I have enough to deal with without you contributing, so can we just get on with this so I can get out of here?
But I couldn't form the words. Dr. Johnson viewed me as a child, and somehow, under his contemptuous gaze, I had regressed to one. I was frightened and shy, and it was all I could do to answer his questions and count the seconds until the end of the visit.
Tags: fear anxiety chronic-illness aids doctors judgmental-people hiv
I didn't want this man touching me in those places. It wasn't that he was being inappropriate, it was just more that he obviously didn't view me as a person, let alone a scared person with actual feelings. He just saw me as yet another scientific specimen there for his own experimenting. I squeezed my eyes shut, cringing the entire time.
Jessica VerdiTags: dehumanization chronic-illness aids doctors hiv
Having a chronic illness, Molly thought, was like being invaded. Her grandmother back in Michigan used to tell about the day one of their cows got loose and wandered into the parlor, and the awful time they had getting her out. That was exactly what Molly's arthritis was like: as if some big old cow had got into her house and wouldn't go away. It just sat there, taking up space in her life and making everything more difficult, mooing loudly from time to time and making cow pies, and all she could do really was edge around it and put up with it.
When other people first became aware of the cow, they expressed concern and anxiety. They suggested strategies for getting the animal out of Molly's parlor: remedies and doctors and procedures, some mainstream and some New Age. They related anecdotes of friends who had removed their own cows in one way or another. But after a while they had exhausted their suggestions. Then they usually began to pretend that the cow wasn't there, and they preferred for Molly to go along with the pretense.
Tags: chronic-illness chronic-pain arthritis
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